As I sat and listened to Paige tell her classmates how she came into this world, and all of the little letters that the docs use to describe her, I smiled at how comfortable she was talking about her world.
See, we have never hidden the truth from Paige. Never. She is present at EVERY doc visit, consult and always during the time we give history. When the docs ask us questions regarding her health, we tell the docs to let her answer for herself.
Over the years we have had mixed responses from docs and nurses. Some give that pouty look to Paige when we give her history. It's hard for them to hear so they assume that it's hard for Paige to hear. Some docs are impressed with her maturity and understanding of her own body and issues related to her prematurity.
The bottom line is that Paige lives in her body, with those lingering issues. Hearing about them does not make them worse. But, giving them a name has helped her understand herself and why she feels the way she does.