Paige first asked me to tell her a funny baby story when she was around 4 years old. I can vividly remember staring her in the face and scrambling for something to say.
What was running through my head...
Funny baby story? Were there any funny moments? She had to do something cute and funny in between her screaming every waking moment, therapy 5 days a week, all of the medical tests and doc appointments. Nope. Nothing at that age.
Toddler years... there has to be something there in between the 5 hours a day of leg stretches to avoid surgery, therapy, screaming from sensory overload, choking on food. Nope. Nothing there.
3 years old... has to be something I can remember from then. Nope. Oh wait... I know what I can tell her.
Well, Miss Paige, I can definitely think of a time when you made me laugh.
One day I was on the phone with a friend. I was sitting on the couch and you were sitting on a little chair in front me, watching television.
After I got off of the phone I asked you if you wanted some lunch. When you turned around I was shocked to see purple marker all over your face! I asked you, "Paige did you color on your face?". With the most serious look on your face you said, "no". Since it was just you and I in the house and since you still had the open marker in your hand, I knew who colored on your face. I picked you up and took you into the bathroom so you could see your face in the mirror. As we were walking into the bathroom I asked you again if you colored on your face and you again told me "no". When I turned on the light and you saw your face you looked at me and then looked back in the mirror and said, "Oh shit!"
(we are still wondering where she learned that word)
Over the years Paige has asked hubby and I to tell her a funny baby story, more times than I can count. We have a few stories that we tell her, but there aren't many. I'm sure funny and cute things did happen, we just can't remember them. Living with post traumatic stress and the rapid pace following the discharge from the NICU, I guess there wasn't any room in our brains for funny memories. I really wish I had started a journal back then.
On a side note... thank you to all who wrote comments and sent emails in response to my last post. I appreciate every ones kind words of understanding and encouragement.
I wish the medical community could live in our world for a week. I wonder how fast they would try to figure out what causes the severe mental health issues that older preemies have if they saw what my daughter (and many other preemies) struggles with every day.