tag:blogger.com,1999:blog-6205556462251851125.post5952353697111943216..comments2024-03-14T01:22:29.342-05:00Comments on The Preemie Experiment: Long Over Due UpdateThePreemie Experimenthttp://www.blogger.com/profile/15882375368535807238noreply@blogger.comBlogger20125tag:blogger.com,1999:blog-6205556462251851125.post-18327011610231867182015-03-14T07:56:23.074-05:002015-03-14T07:56:23.074-05:00I guess I am a rare bird - born 8 weeks premature ...I guess I am a rare bird - born 8 weeks premature in 1956 I survived. I have all the metabolic problems cited on this web site. I also am epileptic. My epilepsy as well as my type 2 diabetes and my weight is completely controlled by a permanent low carb diet! This supports the hypotheses that we premies are born with a system adapted for malnutrition and optimized to live in a low carb world. If that is true it is a simple fix. As a living experiment I hope I can help someone else.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-81710284245691563702009-02-05T04:42:00.000-05:002009-02-05T04:42:00.000-05:00Goods article , this article make some interesting...Goods article , this article make some interesting points .<BR/><BR/><A HREF="http://www.usadaycarecenter.com" REL="nofollow">Day Care Centers And Nurseries information</A>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-72473759581505603522009-01-04T09:43:00.000-05:002009-01-04T09:43:00.000-05:00tbonegrl... thanks for the link. I did see the pub...tbonegrl... thanks for the link. I did see the published research in Pediatrics last week and have started a blog post on it.ThePreemie Experimenthttps://www.blogger.com/profile/15882375368535807238noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-80328588199279244392009-01-04T09:41:00.000-05:002009-01-04T09:41:00.000-05:00Sheila wrote "It is very scary that eating nothing...Sheila wrote "It is very scary that eating nothing but salads yields you a fasting blood sugar close to 200 - that's insane."<BR/><BR/>I completely agree. The GP was basing his treatment decision solely on my A1C. Very scary. And to think that I chose not to go to an endo sooner for fear of what I would look like to the GP! That will be an upcoming blog post!!<BR/><BR/>On a side note... my fasting blood sugar this morning was 105 and I had a tortilla (homemade veggie quesadilla) last night. Yeah!! Woo Hoo!!ThePreemie Experimenthttps://www.blogger.com/profile/15882375368535807238noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-21565429836339549242009-01-04T09:38:00.000-05:002009-01-04T09:38:00.000-05:00terri w/2 wrote: "We are now seriously looking int...terri w/2 wrote: "We are now seriously looking into a vagus nerve stimulator, (yes another surgery) and yes, another attempt at something with iffy consequences."<BR/><BR/>Hi Terri. I have only known a few kiddos who have gotten a VNS but all of them had wonderful results. I agree that it's iffy though. <BR/><BR/>"it would have been probably better if the A1C had been really out of whack"<BR/><BR/>I that my A1C levels are what is most frustrating. I have never had one under 6.9. Multiple elevated A1C levels should have set off alarms with the GP. <BR/><BR/>"Could stress from caregiving all these years be a factor?"<BR/><BR/>In a round about way... absolutely.ThePreemie Experimenthttps://www.blogger.com/profile/15882375368535807238noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-81606831978251881342009-01-04T09:32:00.000-05:002009-01-04T09:32:00.000-05:00Nancy wrote: "Talk to your endo about a nutritioni...Nancy wrote: "Talk to your endo about a nutritionist that he may know in your network if possible."<BR/><BR/>For years I tried to work with our insurance company to get the cost of a nutritionist covered, to no avail. It amazes me that insurance will shell out thousands to diabetes management but won't pay for a nutritionist, who may be able to help a type 2, like myself, become free of diabetes! Can anyone wonder what is wrong with our health care system?<BR/><BR/>My current endocrinologist also shares in my frustration and found a way around it. He has a nutritionist on staff and bills it out as an office visit. I'll be seeing her a few weeks and I can't wait. I can only imagine her face when I tell her that I am a vegetarian who is allergic to soy and mushrooms and is lactose intolerant. I can't wait to see if she has any food suggestions. <BR/><BR/>Nancy also wrote: "I would also instruct Paige on what to do should you begin acting a certain way, whether that be an effect of a high or low blood sugar."<BR/><BR/>We did this last month after a scary episode while hubby was home. I was feeling sick (who wouldn't after eating nothing but salad-no dressing or carbs-for 3 meals a day) and decided to check my sugar. As I was walking to the kitchen I felt as if I was going to pass out. My sugar level was in the 80's. That's not that dangerous but my body couldn't handle it. <BR/><BR/>Paige is really good about it all. When I was pregnant with Tyler she wanted to be the one to poke my finger, so I let her. She used to say that she was practicing being a doctor. She knows how to work my meter and now knows that she needs to call 911 if I become sick or pass out.ThePreemie Experimenthttps://www.blogger.com/profile/15882375368535807238noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-2678513185069238962009-01-04T09:21:00.000-05:002009-01-04T09:21:00.000-05:00Thank you for all of the well wishes everyone!!Thank you for all of the well wishes everyone!!ThePreemie Experimenthttps://www.blogger.com/profile/15882375368535807238noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-23403877324288435022009-01-03T22:49:00.000-05:002009-01-03T22:49:00.000-05:00http://www.msnbc.msn.com/id/28469753/http://www.msnbc.msn.com/id/28469753/tbonegrlhttps://www.blogger.com/profile/15051899488480345902noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-70622930072326387332008-12-31T18:07:00.000-05:002008-12-31T18:07:00.000-05:00So sorry you are having to deal with all of this, ...So sorry you are having to deal with all of this, but glad you are pressing on to get some answers! <BR/><BR/>I will keep my fingers crossed for you getting your own health back in control. It must be so frustrating.Lorihttps://www.blogger.com/profile/17735524011177612504noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-74528209994375211572008-12-31T17:51:00.000-05:002008-12-31T17:51:00.000-05:00Wow, no wonder you haven't been blogging much. It'...Wow, no wonder you haven't been blogging much. It's good to see you're back, though. Hopefully the new meds will help the sugar issues, and you'll get some answers for Paige with that 24 hr. test. Let's hope things will settle a bit and get back to some semblance of normalcy for everyone.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-81906047777039168452008-12-31T17:45:00.000-05:002008-12-31T17:45:00.000-05:00Stacy,Shouldn't you be eating proteins in addition...Stacy,<BR/><BR/>Shouldn't you be eating proteins in addition to or instead of just salad?<BR/><BR/>JoanAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-91085115907085095682008-12-31T15:44:00.000-05:002008-12-31T15:44:00.000-05:00Wow Stacy ... what a plateful. Very worrisome abo...Wow Stacy ... what a plateful. Very worrisome about Paige - and frustrating since there's so much "well, we don't know, wait and see" about it. I guess the fact that she keeps getting older is a good thing in the sense that she's able to be a more educated reporter of her health. <BR/><BR/>It is very scary that eating nothing but salads yields you a fasting blood sugar close to 200 - that's insane. One of my best friends here in Cali was placed on several medications when her fasting BS was lower than yours (she's followed closely by an Endo due to PCOS). He was "expecting" the Insulin Resistance / Type II diabetes, and jumped on the first whiff of change. She feels much better. Hope the New Year is very, very, very boring for you and your kids (and of course DH).<BR/><BR/>SheilaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-66028322971369286202008-12-31T11:10:00.000-05:002008-12-31T11:10:00.000-05:00Stacy;You are so correct about a "normal" EEG bein...Stacy;<BR/><BR/>You are so correct about a "normal" EEG being only a snapshot in time. My daughter has had massive status epilepticus (grand mal) seizures since very young, and one has never been captured on an EEG. Her seizure meds have increased to the point, where it is causing significant letheragy. We are now seriously looking into a vagus nerve stimulator, (yes another surgery) and yes, another attempt at something with iffy consequences. . but if it does work, the seizure meds will be eliminated.<BR/><BR/>My thoughts are with you too as you grapple with this new personal health issue - it would have been probably better if the A1C had been really out of whack, then your diet adjustments would probably have been more effective? Hopefully, the meds will help.<BR/><BR/>Could stress from caregiving all these years be a factor?<BR/><BR/>Best wishes for a healthy '09.terri w/2https://www.blogger.com/profile/12300679169642744506noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-8599605471826037882008-12-31T01:27:00.000-05:002008-12-31T01:27:00.000-05:00Oh wow stacy, and you had time to call me yesterda...Oh wow stacy, and you had time to call me yesterday to support me! It just makes me feel even happier (better) to have you as an online friend (and hopefully soon an in person friend too)<BR/><BR/>I'm sorry you have all this medical stuff going on with you and don't have any answers with Paige's EEG...<BR/><BR/>Sigh..liz.mccarthyhttps://www.blogger.com/profile/10361003614492883341noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-26396431955990488162008-12-31T01:12:00.000-05:002008-12-31T01:12:00.000-05:00Hopefully the medication will help curb your blood...Hopefully the medication will help curb your blood sugars! I am a bit surprised that your GP said the A1c levels were somewhat normal. There is NOTHING normal about a fasting blood sugar (overnight) being around 200. My husband is a diabetic, insulin dependent, and has been since he was 14. We never let our GP handle anything about his diabetes. It's simply too easy for a mistake to be made as far as we're concerned. You might want to consider asking your GP for a referral to a nutrionist as well. Obviously, one that has worked with your endo would be ideal, but that isn't always possible. Talk to your endo about a nutritionist that he may know in your network if possible. When Matt's sugars seem to be a bit out of whack, he consults with a nutritionist for a while until they get back on track. Then he doesn't see her again until he needs it. The nice thing about the nutritionist is that she usually confers with the endo and the endo can tweak the insulin to aide what his typical diet is. The consultation between the two is priceless I tell you!!<BR/><BR/>I really hope the medication works for you and halts anything from progressing further. If there is one thing I have learned from my husband, it is that diabetes is a brutal disease. And one that is never stagnant. Which is so darn frustrating. <BR/><BR/>I would also instruct Paige on what to do should you begin acting a certain way, whether that be an effect of a high or low blood sugar. We hadn't done that with Caitlyn soon enough and we had a horrible episode of Matt passing out while I was at work and he was alone with Caitlyn. A break in to my house by a cousin, 2 fire trucks, and an ambulance later, we decided it was time for Caitlyn to learn what to look for, how to work the meter to test, and what to do with the results. Granted, Matt may be "more diabetic" than you, but it can't hurt to let her know how to react. and she is certainly smart enough to handle the information it seems.<BR/><BR/>Done rambling now, Paige looks gorgeous in the picture :)Nancyhttps://www.blogger.com/profile/09683193254614726192noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-51542649994650615332008-12-30T22:01:00.000-05:002008-12-30T22:01:00.000-05:00Stacy, I'd been worried about oyu! I hope you feel...Stacy, I'd been worried about oyu! I hope you feel better soon, and get some answers for Paige!tbonegrlhttps://www.blogger.com/profile/15051899488480345902noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-21413231882493275562008-12-30T18:38:00.000-05:002008-12-30T18:38:00.000-05:00Glad your back Stacy. I hope things improve with y...Glad your back Stacy. I hope things improve with your helath, and you get back to feeling better, and importantly are able to eat CARBS (I'm a carb freak myself!!!)<BR/><BR/>I hope the 24 hours at the hospital reveals some answers...Paige is in my thoughts...23wktwinsmommyhttps://www.blogger.com/profile/00938265379492098537noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-76907859937710649272008-12-30T16:48:00.000-05:002008-12-30T16:48:00.000-05:00Glad you are back and hope you continue to feel be...Glad you are back and hope you continue to feel better. Hope y'all figure out the seizure issues for Paige.<BR/><BR/>ChristyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-90092192163314436282008-12-30T15:22:00.000-05:002008-12-30T15:22:00.000-05:00Gosh, so sorry you're dealing with all of that! I...Gosh, so sorry you're dealing with all of that! I hope you can get it all figured out soon.<BR/><BR/>I would be puzzled at the clean EEG as well. Hmmm...<BR/><BR/>she looks SO beautiful in that picture, btw!!Rhondahttps://www.blogger.com/profile/15780571361141805413noreply@blogger.comtag:blogger.com,1999:blog-6205556462251851125.post-6142292729235072292008-12-30T14:08:00.000-05:002008-12-30T14:08:00.000-05:00Glad you are feeling better. Man, I wish brains w...Glad you are feeling better. <BR/>Man, I wish brains were easier to figure out! Hope you get answers for Paige soon.<BR/>CarrieAnonymousnoreply@blogger.com